Carl, Pacing Since 2009
Carl used to wake up in the morning “still tired, groggy and feeling fuzzy”. He discussed his experiences with his daughter, Tracey, and described feeling like he “had not slept at all”. Consultations with doctors did not result in any clear indication as to what was causing this problem. Tracey’s son, Cash, has Congenital Central […]
Cassandra, Pacing Since 2015
In 2011, Cassandra started having several cases of pneumonia which led to a diagnosis of hypersensitive pneumonitis. Even though the doctors were not 100% sure of what Cassandra had, they referred to it as Acquired Central Hypoventilation Syndrome. Cassandra was sent to Uppsala Sweden because the doctors there are very experienced in treating those with […]
David
Any time David went into a relaxed state his O2 levels would drop. This led to his diagnosis of Adult Onset Hypoventilation Syndrome (Central Sleep Apnea). In October 2014, David was implanted by Dr. Samuel Chesier at Stanford University Medical Center to allow him freedom from mechanical ventilation. David lives in California, overlooking the beautiful […]
Martina, Pacing Since 2017
Martina was born with hydrocephalus. At 8 days old, a VP shunt was placed in her head to drain the fluid from her brain. Three years later, she was admitted to the pediatric ICU at Hospital Clínico Magallanes in Punta Arenas, Chile due to a blockage in the shunt. She suffered a brain stem lesion […]
