Diaphragm Paralysis

Anders

Sweden

In 1974, Anders was a young electrical engineer working in Africa helping to install a power grid. Soon after his return to his home in Sweden, he became afflicted by a mysterious neuromuscular ailment which rendered him completely paralyzed and ventilator-dependent.

His physicians were unable to establish a definitive diagnosis, although a viral infection was suspected. Although the paralysis eventually passed, Anders was unable to wean from mechanical ventilation.

In 1987, Anders was implanted with a breathing pacemaker. Although he was never able to obtain adequate ventilation from his left side, he was weaned from the ventilator using unilateral pacing. Anders has continued to pace for over twenty years.

 


michaelMichael

United States

In 2005, Michael began to exhibit difficulty breathing. After an extensive workup and an unsuccessful trial with C-Pap, he was provided with a chest cuirass. About one week later, he suffered a stroke to the brain stem which paralyzed his diaphragms. Michael was left no other option than a tracheotomy and a mechanical ventilator.

Michael was evaluated for a breathing pacemaker at the Methodist Hospital in Indianapolis. After some preoperative testing to ensure his phrenic nerves were intact, he was implanted and began pacing in June 2006.

He has undergone extensive physical therapy, and “can now walk, talk, eat, and drink all on my own with very little help.” He still uses his ventilator at night and occasionally when under the weather, “but it sure beats being hooked to that thing 24/7.”

He states “Thanks to the breathing pacemaker system, I have been given an extension on my life. I am embracing that extension with happiness and joy and alot of love!”