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So far Adam has created 9 blog entries.

Skiing with the Avery Diaphragm Pacemaker

Those diagnosed with Congenital Central Hypoventilation Syndrome (CCHS) would typically require Positive Pressure Ventilation (PPV) in order to regulate breathing, by utilizing a tracheotomy. For some, this means being dependent on a ventilator 24 hours per day which requires carrying one with them at all times. This can severely limit the amount and types of... Read More

Diaphragm Pacemaker for Teen Featured on WSB-TV Atlanta

Fourteen year-old Sedarius was recently featured on WSB-TV Atlanta as the first pediatric patient to receive surgery to implant a diaphragm pacemaker in the state of Georgia. See his story below: Sedarius was diagnosed with CCHS when he was eight years old, and required a tracheotomy and ventilator to breathe while he slept.  The Avery Breathing... Read More

What You Should Know About Quadriplegia

If you or someone you love is a person with quadriplegia, you are used to being asked a barrage of questions. What does it mean to be quadriplegic? What causes quadriplegia? How does quadriplegia affect your body? Is there a treatment for quadriplegia?   What is Quadriplegia? Quadriplegia, also known as tetraplegia, is the paralysis... Read More

Spinal Cord Injury Treatments

The spinal cord extends from the base of the brain downward, so at any point along the spinal cord, direct or indirect damage can result in spinal cord injury. When either direct (such as trauma) or indirect damage (from disease or indirect trauma) of the spinal cord occurs, immediate medical attention is required to avoid... Read More

International CCHS Conference 2018

         5th International CCHS Conference: The Future is NOW Priorities, Partnerships, and Patient Voice When: June 20-23, 2018 Where: Chase Park Plaza, St. Louis, MO You can register for the conference at   The CCHS Network, Children’s Hospital, Los Angeles, Seattle Children’s Hospital, and the European Union Congenital Hypoventilation Syndrome (EUCHS)... Read More

Understanding Spinal Cord Injuries (SCI)

Within all of us is a spinal cord that connects every square inch of your body to your brain. The spinal cord itself extends from the base of the brain down to your pelvic region, and the vertebrae that make up your spine protect it. Just like all parts of the human body, the spinal... Read More

Avery Biomedical Letter to Medscape Regarding Diaphragm Pacing

Please find below a letter that our attorney sent to the editors of Medscape (parent company WebMD) who have published false information about our product. Medscape Letter Regarding Avery System Avery Biomedical Devices has an outstanding track record spanning over 45 years including an outstanding safety record, long term viability with some patients pacing for... Read More