Client Profile



Dalen enjoying life with the Avery Pacemaker In 2002, at the age of 52, Dalen fell from a ladder and was rendered a C2 quadriplegic and ventilator dependent. In 2014, Dalen was implanted with the Avery Diaphragm Pacemaker to replace his mechanical ventilator.  He is now pacing 24/7 and is enjoying his [...]


Avery’s Ballerina


Elise has Congenital Central Hypoventilation Syndrome (CCHS). Because Elise would get at least two infections a year, her doctor recommended the Avery Diaphragm Pacemaker. In November 2012, Elise was implanted at the Tulane University Hospital by Dr. Steiner. Six weeks after being implanted, Elise was pacing nine hours a night. Elise was also able to [...]

Avery’s Ballerina2021-03-23T13:04:51+00:00

Cassandra Graduates Medical School and Becomes Doctor with the Avery Pacer


Cassandra after graduating medical school In 2011, Cassandra started having several cases of pneumonia which led to a diagnosis of hypersensitive pneumonitis. Even though the doctors were not 100% sure of what Cassandra had, they referred to it as Acquired Central Hypoventilation Syndrome. Cassandra was sent to Uppsala Sweden because the doctors there [...]

Cassandra Graduates Medical School and Becomes Doctor with the Avery Pacer2021-03-23T13:04:31+00:00



Libanier enjoying life with the Avery Pacemaker Libanier was only 6 years old when he was hit by a car. Even though he experienced a typical childhood, at the age of 16 he began to feel very weak and was diagnosed with post traumatic syringomyelia. In June 2014, while traveling to the [...]




Chandler after her high school graduation   Chandler was born with myelomeningocele (a type of spina bifida) and requires mechanical ventilation to breathe. At age 5, she was implanted with the Avery Diaphragm Pacemaker. Since then, she has enjoyed all the freedoms that pacing has allowed—she moves freely about her home, school classrooms [...]


Marliné Competes in Show Jumping


Marliné competing in show jumping Marliné was born prematurely in South Africa in 2011. She was diagnosed with Congenital Central Hypoventilation Syndrome (CCHS). Searching for an alternative to mechanical ventilation, her mother, Annalize, was referred to Dr. Martin Bruwer, a Cardiothoracic Surgeon in South Africa. Marliné as a young child Dr. [...]

Marliné Competes in Show Jumping2021-03-10T19:40:09+00:00



David enjoying life with the Avery Pacemaker Any time David went into a relaxed state his O2 levels would drop. This led to his diagnosis of Adult Onset Hypoventilation Syndrome (Central Sleep Apnea). In October 2014, David was implanted by Dr. Samuel Chesier at Stanford University Medical Center to allow him freedom [...]


Monica Finishes a 5K While Pacing!


Monica finishing a 5k with her friends Monica suffered damage to the upper motor neuron portion of her right-side phrenic nerve and was diagnosed with unilateral diaphragm paralysis. In May 2015, she was implanted with the Avery Diaphragm Pacemaker by Dr. Don Headley at St Joseph’s Hospital in Phoenix, Arizona. Monica states, “the [...]

Monica Finishes a 5K While Pacing!2021-02-23T16:38:08+00:00

Woman Living a Liberating Life Thanks to the Avery Diaphragm Pacemaker


Arlyne using her Avery pacer Arlyne became a quadriplegic due to a motor vehicle accident in 1989, resulting in her having a spinal cord injury at the C1-C2 level. Arlyne found out about diaphragm pacers from Dr. Quioto. She was then implanted with the Avery Diaphragm Pacemaker in 1993 by Dr. Michael Turner. [...]

Woman Living a Liberating Life Thanks to the Avery Diaphragm Pacemaker2021-01-27T16:34:15+00:00

Shannon & Lauren


Lauren and Shannon with their children   Shannon and Lauren are 33-year-old identical twins living with CCHS. From birth to age 8, ventilation was provided via tracheostomy and then BiPap was used from age 8 to 16. In 2003, Shannon and Lauren received the Avery diaphragm pacers at London Health Science Centre in [...]

Shannon & Lauren2021-02-23T16:50:32+00:00