Client Profile



Anna was born in Denmark in 1996. She was diagnosed with CCHS at 11 months old. Before getting the pacers, she used a VPAP bi-level machine as her primary means of ventilation.  She was implanted with the Avery Diaphragm Pacing System in 2014. She is currently in college studying business and plans on becoming [...]




Anytime David went into a relaxed state his O2 levels would drop. This led to his diagnosis of Adult Onset Hypoventilation Syndrome. In October 2014, David was implanted by Dr Samuel Chesire at Stanford University medical center to allow him freedom from mechanical ventilation. David lives in Pioneer, California overlooking the beautiful Sierra Mountains. [...]




Libanier was only 6 years old when he was hit by a car. Even though he experienced a typical childhood, at the age of 16 he began to feel very weak and was diagnosed with post traumatic syringomyelia. In June 2014, while traveling to the Dominican Republic, he started having trouble with his breathing. [...]




In 1974, Anders was a young electrical engineer working in Africa helping to install a power grid. Soon after his return to his home in Sweden, he became afflicted by a mysterious neuromuscular ailment which rendered him completely paralyzed and ventilator-dependent. His physicians were unable to establish a definitive diagnosis, although a viral infection was [...]




In 2005, Michael began to exhibit difficulty breathing. After an extensive workup and an unsuccessful trial with C-Pap, he was provided with a chest cuirass. About one week later, he suffered a stroke to the brain stem which paralyzed his diaphragms. Mike was left no other option than a tracheotomy and a mechanical ventilator. Michael [...]


Shannon & Lauren


Shannon and Lauren were born in April 1987, and are one of only two known sets of identical twins born with congenital central hypoventilation syndrome. Although switching to bi-pap ventilation enabled their tracheostomies to be closed, their activities were still limited by the large duffel bags of equipment they need to carry with them. In [...]

Shannon & Lauren2017-03-23T14:42:40+00:00



Sogi was born in August 1993 and soon after was diagnosed with Congenital Central Hypoventilation Syndrome, which was managed via mechanical ventilation. In the summer of 2005, Sogi and his family traveled to the Children’s Hospital of Los Angeles to be implanted with a diaphragm pacing system. His pulmonologist and a surgeon traveled with him [...]




In 1998, Jamie was a professional cricket player with the Yorkshire County Cricket Club. While attending a tournament in Cape Town, South Africa, he was involved in automobile accident which left him a ventilator-dependent quadriplegic. Upon his return to the U.K., Jamie was cared for at the Yorkshire Regional Spinal Injuries Centre at Pinderfields Hospital. [...]




Giuseppe was the commander of the police department in Felino, Italy when he became a high quadriplegic in a traffic accident in February 1999. He remained in a coma for 40 days, and it took several more weeks for him to become fully cognizant of his accident. Giuseppe developed a passion for all things technological [...]




At the age of 17, Debbie became a C1-C2 quadriplegic as a result of a diving accident. In 1973, after living for over a year in an intensive care unit tethered to a mechanical ventilator, she became one of the first patients ever to be implanted with a diaphragm pacing system. Through use of her [...]