Client Profile

ROHHAD and CCHS patient pacing 6 years with The Avery Diaphragm Pacing System


8 years old, my son, Josh was happy, healthy and very active. He loved sports and dreamed of being a football player when he grew up. All of a sudden, though, for no apparent reason, he couldn’t stay awake to do homework or even any of his favorite activities. Into the bath to wake [...]

ROHHAD and CCHS patient pacing 6 years with The Avery Diaphragm Pacing System2017-06-02T17:56:13+00:00



A few weeks after Cash was born in January 2008, he was diagnosed with a breathing condition known as congenital central hypoventilation syndrome (CCHS), forcing doctors to perform a tracheotomy and leaving him ventilator dependent. A tracheotomy is a surgical procedure that opens a direct airway to the trachea to facilitate breathing. The resulting [...]


Breathing with Quadriplegia


For most people, breathing is a natural action. We do not think about it, yet is vital to our existence. But for those living with quadriplegia, the muscles required for breathing are paralyzed, rendering them unable to breathe on their own without mechanical assistance. Quadriplegia (or tetraplegia) is the paralysis of all four limbs [...]

Breathing with Quadriplegia2017-03-02T15:41:15+00:00



At the age of 4, tragedy struck Nicole: a motor vehicle accident left her with a stretched spine as a result of whiplash, rendering her quadriplegic and confining her to a motorized wheelchair. Despite her disability, Nicole has remained very active. Now a 21 year-old undergraduate at the New York Institute of Technology studying advertising, [...]


Understanding Quadriplegia and Spinal Cord Injury


The spine is one of the most vital parts of the human body. Made up of hard, sturdy vertebrae that enclose the spinal cord, this structure not only supports the body, but also encases the nerves that allow the brain and body to communicate so that the body may function. Quadriplegia, also known as [...]

Understanding Quadriplegia and Spinal Cord Injury2017-03-02T15:52:08+00:00

Emily – Congenital Central Hypoventilation Syndrome (CCHS) Testimonial


Emily, a sixteen-year-old student who recently completed her GCSE’s and is beginning college in England, has been using the Avery Diaphragm Pacing System since she was three years old. She was born with Congenital Central Hypoventilation Syndrome (CCHS), a disorder that affects breathing, causing shallow breaths (hypoventilation), especially during sleep. Those with this condition [...]

Emily – Congenital Central Hypoventilation Syndrome (CCHS) Testimonial2017-06-02T18:44:36+00:00

Freedom to Live Independently – Chuck’s Story


In 1981, at the age of 15, Chuck became a quadriplegic as a result of shooting accident. The accident left him unable to breathe on his own.   About a year later, Chuck was implanted with the Avery Diaphragm Pacing System.  By the time he left the hospital, he was pacing 24 hours a day, [...]

Freedom to Live Independently – Chuck’s Story2017-03-23T13:54:56+00:00

Ventilators for Quadriplegia – There Is a Better Option


Quadriplegia is the inability to move or feel both arms and both legs because of an injury or illness. The levels of quadriplegia (C1-C8) directly correlate to a patient’s abilities and needs. (See also: Quadriplegia) Methods of Ventilation There are alternatives to ventilators for quadriplegics: Positive Pressure Ventilation (PPV) Any of numerous [...]

Ventilators for Quadriplegia – There Is a Better Option2019-09-03T13:30:24+00:00