Featured Client Story

Anna

2021-05-04T14:14:38+00:00

Anna enjoying her freedom from VPAP on a hike Anna was born in Denmark in 1996 and was diagnosed with CCHS at 11 months old. This meant that she had to use a VPAP bi-level machine as her primary means of ventilation, until she was implanted with the Avery Diaphragm Pacing System [...]

Anna2021-05-04T14:14:38+00:00

Central Sleep Apnea With The Diaphragm Pacemaker

2021-04-20T13:35:52+00:00

Carl with his grandson, Cash. Both now use the Avery Diaphragm Pacemaker. Carl used to wake up in the morning “still tired, groggy and feeling fuzzy”. He discussed his experiences with his daughter, Tracey, and described feeling like he “had not slept at all”. Consultations with doctors did not result in any clear [...]

Central Sleep Apnea With The Diaphragm Pacemaker2021-04-20T13:35:52+00:00

Dalen

2021-04-13T13:49:44+00:00

Dalen enjoying life with the Avery Pacemaker In 2002, at the age of 52, Dalen fell from a ladder and was rendered a C2 quadriplegic and ventilator dependent. In 2014, Dalen was implanted with the Avery Diaphragm Pacemaker to replace his mechanical ventilator.  He is now pacing 24/7 and is enjoying his [...]

Dalen2021-04-13T13:49:44+00:00

Avery’s Ballerina

2021-03-23T13:04:51+00:00

Elise has Congenital Central Hypoventilation Syndrome (CCHS). Because Elise would get at least two infections a year, her doctor recommended the Avery Diaphragm Pacemaker. In November 2012, Elise was implanted at the Tulane University Hospital by Dr. Steiner. Six weeks after being implanted, Elise was pacing nine hours a night. Elise was also able to [...]

Avery’s Ballerina2021-03-23T13:04:51+00:00

Cassandra Graduates Medical School and Becomes Doctor with the Avery Pacer

2021-03-23T13:04:31+00:00

Cassandra after graduating medical school In 2011, Cassandra started having several cases of pneumonia which led to a diagnosis of hypersensitive pneumonitis. Even though the doctors were not 100% sure of what Cassandra had, they referred to it as Acquired Central Hypoventilation Syndrome. Cassandra was sent to Uppsala Sweden because the doctors there [...]

Cassandra Graduates Medical School and Becomes Doctor with the Avery Pacer2021-03-23T13:04:31+00:00

Libanier

2021-03-23T13:00:25+00:00

Libanier enjoying life with the Avery Pacemaker Libanier was only 6 years old when he was hit by a car. Even though he experienced a typical childhood, at the age of 16 he began to feel very weak and was diagnosed with post traumatic syringomyelia. In June 2014, while traveling to the [...]

Libanier2021-03-23T13:00:25+00:00

Chandler

2021-03-16T14:45:15+00:00

Chandler after her high school graduation   Chandler was born with myelomeningocele (a type of spina bifida) and requires mechanical ventilation to breathe. At age 5, she was implanted with the Avery Diaphragm Pacemaker. Since then, she has enjoyed all the freedoms that pacing has allowed—she moves freely about her home, school classrooms [...]

Chandler2021-03-16T14:45:15+00:00

Marliné Competes in Show Jumping

2021-03-10T19:40:09+00:00

Marliné competing in show jumping Marliné was born prematurely in South Africa in 2011. She was diagnosed with Congenital Central Hypoventilation Syndrome (CCHS). Searching for an alternative to mechanical ventilation, her mother, Annalize, was referred to Dr. Martin Bruwer, a Cardiothoracic Surgeon in South Africa. Marliné as a young child Dr. [...]

Marliné Competes in Show Jumping2021-03-10T19:40:09+00:00

David

2021-03-04T19:49:47+00:00

David enjoying life with the Avery Pacemaker Any time David went into a relaxed state his O2 levels would drop. This led to his diagnosis of Adult Onset Hypoventilation Syndrome (Central Sleep Apnea). In October 2014, David was implanted by Dr. Samuel Chesier at Stanford University Medical Center to allow him freedom [...]

David2021-03-04T19:49:47+00:00

Monica Finishes a 5K While Pacing!

2021-02-23T16:38:08+00:00

Monica finishing a 5k with her friends Monica suffered damage to the upper motor neuron portion of her right-side phrenic nerve and was diagnosed with unilateral diaphragm paralysis. In May 2015, she was implanted with the Avery Diaphragm Pacemaker by Dr. Don Headley at St Joseph’s Hospital in Phoenix, Arizona. Monica states, “the [...]

Monica Finishes a 5K While Pacing!2021-02-23T16:38:08+00:00