Featured Client Story

Skiing with the Avery Diaphragm Pacemaker

2019-03-01T20:16:06+00:00

Those diagnosed with Congenital Central Hypoventilation Syndrome (CCHS) would typically require Positive Pressure Ventilation (PPV) in order to regulate breathing, by utilizing a tracheotomy. For some, this means being dependent on a ventilator 24 hours per day which requires carrying one with them at all times. This can severely limit the amount and types of [...]

Skiing with the Avery Diaphragm Pacemaker2019-03-01T20:16:06+00:00

Diaphragm Pacemaker for Teen Featured on WSB-TV Atlanta

2019-01-23T14:05:58+00:00

Fourteen year-old Sedarius was recently featured on WSB-TV Atlanta as the first pediatric patient to receive surgery to implant a diaphragm pacemaker in the state of Georgia. See his story below: Sedarius was diagnosed with CCHS when he was eight years old, and required a tracheotomy and ventilator to breathe while he slept.  The Avery Breathing [...]

Diaphragm Pacemaker for Teen Featured on WSB-TV Atlanta2019-01-23T14:05:58+00:00

Avery’s Ballerina

2018-06-15T13:52:25+00:00

Elise has Congenital Central Hypoventilation Syndrome (CCHS). Shortly before her ninth birthday, Elise and her family were told by her doctor about the Avery Diaphragm Pacer because Elise would get at least two infections a year. Elise was implanted on November 14, 2012 at the Tulane University Hospital by Dr. Steiner.  Six weeks after being [...]

Avery’s Ballerina2018-06-15T13:52:25+00:00

Young Woman is ‘stronger than ever’ with Avery Diaphragm Pacemaker

2018-06-13T14:02:53+00:00

In 2016, Niki, a young Hungarian 21 year old woman became a quadriplegic patient after a serious motorbike accident.  The CT and MRI imaging confirmed the fracture of the C II vertebra with the compression of the spinal cord. After the stabilization of the cervical vertebra, a tracheotomy was performed. 10 months later, her hemodynamic [...]

Young Woman is ‘stronger than ever’ with Avery Diaphragm Pacemaker2018-06-13T14:02:53+00:00

Woman Living a Liberating Life Thanks to the Avery Diaphragm Pacemaker

2018-06-15T13:54:52+00:00

In 1989, a motor vehicle accident rendered Arlyne a C1-C2 quadriplegic Arlyne found out about the Avery Diaphragm Pacer from Dr. Quioto and in 1993, she was implanted with the Avery system at Methodist Hospital by Dr. Michael Turner. In her spare time Arlyne is very active in her church and she goes out with [...]

Woman Living a Liberating Life Thanks to the Avery Diaphragm Pacemaker2018-06-15T13:54:52+00:00

Going Outside for First Time Since Being Implanted

2018-03-13T19:41:06+00:00

Victor was born in January 1998. Victor is diagnosed with Central Apnea. Victor was implanted on September 1st 2015. He was implanted in Brazil by Dr. Rodrigo Sardenberg. Victor and his family were watching a news program when they found out about the Avery Diaphragm Pacemaker. The segment was on a child that was going [...]

Going Outside for First Time Since Being Implanted2018-03-13T19:41:06+00:00

International CCHS Conference 2018

2017-09-18T19:37:58+00:00

         5th International CCHS Conference: The Future is NOW Priorities, Partnerships, and Patient Voice When: June 20-23, 2018 Where: Chase Park Plaza, St. Louis, MO www.chaseparkplaza.com You can register for the conference at www.cchsnetwork.org   The CCHS Network, Children’s Hospital, Los Angeles, Seattle Children’s Hospital, and the European Union Congenital Hypoventilation Syndrome (EUCHS) [...]

International CCHS Conference 20182017-09-18T19:37:58+00:00

Avery Diaphragm Pacemaker Gives Woman Gift of Mobility

2017-09-15T14:58:38+00:00

Perihan fell down a mobile staircase sustaining a spinal cord injury at the neck level. Perihan’s neurosurgeon, Professor Sedat Cagli, at Ege University Hospital, Izmir Turkey told her about the Avery Diaphragm Pacer and in February 2012 she was implanted. Thirty days later, she began using the pacer and now paces 12 hours a day. [...]

Avery Diaphragm Pacemaker Gives Woman Gift of Mobility2017-09-15T14:58:38+00:00

Graduated Medical School With The Avery Diaphragm Pacer

2020-11-24T23:35:54+00:00

In 2011, Cassandra started having several cases of pneumonia which led to a diagnosis of hypersensitive pneumonitis. Even though the doctors were not 100% sure of what Cassandra had, they referred to it as Acquired Central Hypoventilation Syndrome. Cassandra was sent to Uppsala Sweden because the doctors there are very experienced in treating those with [...]

Graduated Medical School With The Avery Diaphragm Pacer2020-11-24T23:35:54+00:00

Quadriplegic Pacing 24 /7 after 16 Years on a Mechanical Ventilator

2020-11-24T21:31:53+00:00

In 1994, Khaldoon, a 17-year old honors student and swimming champion from Syria, suffered a spinal cord injury in a diving accident leaving him a ventilator-dependent quadriplegic (tetraplegic). 16 years later, he was implanted with the Avery Breathing Pacemaker and was pacing 24/7 less than one year post surgery. In 2015, after four years of [...]

Quadriplegic Pacing 24 /7 after 16 Years on a Mechanical Ventilator2020-11-24T21:31:53+00:00