Featured Client Story

Martina Pacing 10 hours a Day Just Two Months Post Surgery

2017-07-07T14:54:37+00:00

Martina was born with hydrocephalus. Eight days later, a VP shunt was placed in her head to drain the l fluid from her brain. At age of three, she was admitted to the pediatric ICU of the Hospital Clínico Magallanes in Punta Arenas, Chile due to a blockage in the shunt. She suffered a brain [...]

Martina Pacing 10 hours a Day Just Two Months Post Surgery2017-07-07T14:54:37+00:00

Marissa

2017-06-02T18:56:04+00:00

Marissa, a twenty-seven-year-old nursing student, has been pacing since 2007. She was diagnosed with CCHS at three weeks old. She had a trach and was mechanically ventilated at night while asleep until she was paced at age 18. During a sleep study conducted in late 2015, it was discovered she was suffering from Obstructive [...]

Marissa2017-06-02T18:56:04+00:00

Ryo

2017-06-02T18:56:37+00:00

In 1999, Ryo became a quadriplegic because of a traffic accident with his motorbike. He remained in the hospital for 15 months tethered to a mechanical ventilator. After 15 months in the hospital tethered to a mechanical ventilator, Ryo was implanted with the Avery Diaphragm Pacing System at Fujita Health University. Five short months [...]

Ryo2017-06-02T18:56:37+00:00

Willie

2017-06-02T19:11:14+00:00

In November 1993, Willie was paralyzed after diving into the pool at his high school. Thanks to his quick thinking friends, he was airlifted to Johannesburg General Hospital in South Africa. In July 1994, Willie was implanted with the Avery diaphragm pacemaker. Willie first heard of the pacer when his General Practitioner had told [...]

Willie2017-06-02T19:11:14+00:00

Tina

2018-06-15T14:08:50+00:00

Tina lives in Tennessee with her husband and daughter. Tina suffered with pneumonia for nine months starting in October 2008. Doctors later diagnosed Tina with a rare and congenital condition, Alpha-1 Antitrypsin. The deficiency of Alpha-1 can cause lung diseases in adults, and therefore is referred to “genetic COPD.” “I am doing great, I pace [...]

Tina2018-06-15T14:08:50+00:00

Libanier

2017-07-21T21:16:13+00:00

Libanier was only 6 years old when he was hit by a car. Even though he experienced a typical childhood, at the age of 16 he began to feel very weak and was diagnosed with post traumatic syringomyelia. In June 2014, while traveling to the Dominican Republic, he started having trouble with his breathing. [...]

Libanier2017-07-21T21:16:13+00:00

Caroline

2017-06-02T19:07:04+00:00

Caroline was just ten months old in February 2003 when she became a C1-C2 quadriplegic as a result of an automobile accident. Like many quadriplegics, Caroline endured repeated hospitalizations for recurrent pneumonia. Caroline was implanted with her diaphragm pacing system in August 2007 by Dr. Robert Cilley at the Hershey Medical Center near her [...]

Caroline2017-06-02T19:07:04+00:00

Nicole

2017-06-02T19:22:35+00:00

At the age of 4, tragedy struck Nicole: a motor vehicle accident left her with a stretched spine as a result of whiplash, rendering her quadriplegic and confining her to a motorized wheelchair. Despite her disability, Nicole has remained very active. Now a 21 year-old undergraduate at the New York Institute of Technology studying advertising, [...]

Nicole2017-06-02T19:22:35+00:00

Freedom to Live Independently – Chuck’s Story

2017-03-23T13:54:56+00:00

In 1981, at the age of 15, Chuck became a quadriplegic as a result of shooting accident. The accident left him unable to breathe on his own.   About a year later, Chuck was implanted with the Avery Diaphragm Pacing System.  By the time he left the hospital, he was pacing 24 hours a day, [...]

Freedom to Live Independently – Chuck’s Story2017-03-23T13:54:56+00:00

CCHS Breathing Without Tracheotomy

2019-02-26T21:40:50+00:00

Congenital Central Hypoventilation Syndrome (CCHS)Central sleep apnea is a breathing disorder in which individuals experience pauses in breathing during sleep.  When central sleep apnea is present from birth, it is called Congenital Central Hypoventilation Syndrome, or CCHS.  CCHS patients typically have adequate ventilation while awake, and hypoventilation with shallow breathing while sleeping.  However, patients with [...]

CCHS Breathing Without Tracheotomy2019-02-26T21:40:50+00:00