Nico is a 28-year-old man with CCHS living in New York, USA. He has been pacing since 2006.
He earned his MPA in 2013 and has worked with nonprofit organizations in New York, California, and Texas. He is the only CCHS patient to serve two yearlong terms in AmeriCorps. Nico is a board member and volunteer with the CCHS Family Network, where he oversees the Network’s social media projects and focuses on organizational development.
He says, “Using the pacers means I’ve got more energy during the day. It makes napping and traveling much easier!”.
The Avery Diaphragm Pacing System is an implanted phrenic nerve or diaphragm stimulator. It consists of surgically implanted electrodes and receivers with an external transmitter and antennas.
It can be implanted either cervically or thoracically using minimally-invasive techniques such as video-assisted (VATS) or thoracoscopic approaches.
The Avery Diaphragm Pacing System is the only diaphragm pacing system to have full premarket approval (PMA) from the US FDA and CE Marking privileges under the European Active Implantable Medical Device Directive for adult and pediatric use.
In addition, using small implanted radiofrequency receivers rather than electrode wires that pass directly through the skin may decrease a patient’s risk of infection and ongoing wound care management issues.
Avery has been commercially distributing diaphragm pacing systems since the early 1970’s. Since then, more than 2,000 patients have been implanted in over 40 countries establishing an unsurpassed record of safety and reliability. Due to their high reliability and cost effectiveness, the Avery pacers are reimbursed by Medicare and most private and government insurance around the world.