Those diagnosed with Congenital Central Hypoventilation Syndrome (CCHS) would typically require Positive Pressure Ventilation (PPV) in order to regulate breathing, by utilizing a tracheotomy. For some, this means being dependent on a ventilator 24 hours per day which requires carrying one with them at all times. This can severely limit the amount and types of activities one may participate in. Even for those who aren’t vent-dependent full time, there can be significant limitations.
Below is a video of Evan, who was implanted with the Avery Diaphragm Pacing System. Not only is Evan able to move around more freely, he is able to ski with ease. For those that are vent-dependent, this is a monumental step to independence!
The Avery Diaphragm Pacing System provides breathing assistance through phrenic nerve stimulation (causing the diaphragm to contract, and subsequent inhalation of air). Without the Avery Diaphragm Pacemaker, many patients need to carry a ventilator with them at all times. The liberation of the ventilator has enabled patients like Evan to be able to participate in sports such as skiing, swimming, baseball, and horseback riding. As a result, many patients with the Avery Diaphragm Pacing System are also able to have their tracheotomy closed, and use the Diaphragm Pacing System on an as-needed basis.
To learn more about the Avery Diaphragm Pacing Systems and the benefits it may provide, just click the “Request Information” button below and one of our representatives will be happy to contact you with more information.