Success Stories

Avery’s Ballerina

Elise has Congenital Central Hypoventilation Syndrome (CCHS). Shortly before her ninth birthday, Elise and her family were told by her doctor about the Avery Diaphragm... Read More

International CCHS Conference 2018

         5th International CCHS Conference: The Future is NOW Priorities, Partnerships, and Patient Voice When: June 20-23, 2018 Where: Chase Park Plaza, St.... Read More


Marissa, a twenty-seven-year-old nursing student, has been pacing since 2007. She was diagnosed with CCHS at three weeks old. She had a trach and... Read More


Nico is a 28-year-old man with CCHS living in New York, USA. He has been pacing since 2006. He earned his MPA in 2013... Read More


Anna was born in Denmark in 1996. She was diagnosed with CCHS at 11 months old. Before getting the pacers, she used a VPAP... Read More

Shannon & Lauren

Shannon and Lauren were born in April 1987, and are one of only two known sets of identical twins born with congenital central hypoventilation syndrome.... Read More


Sogi was born in August 1993 and soon after was diagnosed with Congenital Central Hypoventilation Syndrome, which was managed via mechanical ventilation. In the summer... Read More

ROHHAD and CCHS patient pacing 6 years with The Avery Diaphragm Pacing System

8 years old, my son, Josh was happy, healthy and very active. He loved sports and dreamed of being a football player when he... Read More


A few weeks after Cash was born in January 2008, he was diagnosed with a breathing condition known as congenital central hypoventilation syndrome (CCHS),... Read More

Emily – Congenital Central Hypoventilation Syndrome (CCHS) Testimonial

Emily, a sixteen-year-old student who recently completed her GCSE’s and is beginning college in England, has been using the Avery Diaphragm Pacing System since... Read More